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Embrace The Brace

Coping Tips For Ehlers-Danlos Syndrome

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Category: Daily Living

Tips and tricks for how to manage EDS in everyday life. Whether you’re bed bound, house bound, working towards independence or trying to hold down a job or manage a household, there’s a section for you. Also includes: nutritional information and routines for movement and self care.

June 14, 2017 Daily Living / Ehlers Danlos syndrome / Improving Rest / Not Functioning / Pain Management / Products / Rest

Weighted Blanket Review

The weighted blanket has an immediate calming effect on the brain and body.

May 31, 2017 Daily Living / Ehlers Danlos syndrome / Nutrition

Juicing FRESH

The Benefits of Fresh Pressed Juice for EDS Whether you have trouble eating enough food, trouble absorbing nutrients, or trouble

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May 8, 2017 Daily Living / Ehlers Danlos syndrome / Ergonomics / Functioning at Work / Products

Active Sitting

You can prevent joint strain, improve posture, and build core strength by sitting activly. The key to active sitting is

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April 9, 2017 Daily Living / Ehlers Danlos syndrome / Improving Rest / Not Functioning

Sleep Pod

“The Sleep Pod from SOS is designed to offer customized postural support and comfort to clients when resting and sleeping.”

March 30, 2017 Daily Living / Dysautonomia / Ehlers Danlos syndrome / General Help / Nutrition / Products for dysautonomia and digestion

Electrolytes

Electrolytes are often the first thing you hear about when diagnosed with POTS or dysautonomia. It seems simple enough to understand, but the amount of products out there are totally overwhelming! Remember that everyone’s body is different you may need to try several different formulas to find the right one.

March 29, 2017 Daily Living / Ergonomics / Functioning at Home / Home Modifications / Inventions / Products

Bathroom Modifications

I’ve tried to modify my home environment to reduce pain and injures. Here’s a list of the modifications and products I’ve added to my bathroom.

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Instagram

@accessibleyoga included EDS in their movement to make yoga more accessible šŸ‘šŸ˜ the world is remembering the zebras! & Heads up St. Louis they are having a workshop weekend here the last weekend of May/ into June. You can find more information on accessibleyoga.org #ehlersdanlossyndrome #edsathletes #embracethebrace #hypermobileyogi #accesibleyoga #stlouisyoga
Positive thinking investigation part 1 is up on Embracethebrace.com Thank you @adelaidegoodeve for your help with visualization training & @soniaslankard for the dream board workshop perfect timing for this investigation! #positivethinking #intentions #affirmations #dreamboard #visualization #visionboard #manifestation #thesecret #thelawofattraction
I’m happy I was able to help raise awareness for EDS and how complex, systemic and dangerous it can be. ( link posted above) I hope to help save future lives from destruction through early diagnoses! I’m very thankful to everyone who helped make this article & video publication possible! This story is like nothing I ever imagined would happen in my lifetime it’s been strange to realize how many people are touched by my experience of me simply being my as usual self, just under extreme circumstance...ultra stubborn, unusual, and healing with laughter. #edsawareness #ehlersdanlossyndrome #ehlersdanlosawareness
The power of positive thinking & ā€œthe secretā€ currently under investigationšŸ¤“šŸ‘€so that next time someone tells you to be positive in response to your suffering you will know fact from fiction āœØšŸ’«hopefully to create a great conversion out of what can be an irritating comment. And learn to gain all the benefits from what appears to be the magic of statistics and mindful awareness #positivethinking #psuedoscience #chronicillness #chronicillnessblogger

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